August 2000 to September 2001 Alex was in remission and off treatment, so
Affiliates for Alex became an afterthought.
We began to feel confident that things were going to be okay, but that's
when we got blindsided again. In July of 2001 Alex began to have problems
with her right eye swelling shut. At first the doctors thought it was a sty,
but when it didn't go away after two months a CT scan was scheduled. On
September 12, 2001 the CT scan revealed that Alex had a tumor behind her
eye. Two days later it was confirmed that it was a Leukemic
tumor and that there were also Leukemia cells in her Central Nervous System
(CNS). The Leukemia was back for a third time.
Over the next 18 months we were hit with a series of other misfortunes
- The near collapse of my
business after the 9/11 attacks. I run a web design business that
worked on several local and state government projects. The majority of
these projects were canceled in the days after 9/11.
- Alex relapsing four more
times with her remission time decreasing each time. These relapses and
subsequent treatments resulted in several long term hospital stays.
(Note: You may notice that Alex had hair during this time. Alex was
treated with Mylotarg, a targeted chemo, which doesn't result in hair
- The 14-week premature
birth of our son Nicholas (he was 13" long and 1 lb, 9 oz) on 12/13/02
(Friday the 13th if you can believe it!)
- Andrea developing a
serious staph infection, after Nicholas' birth, that left her near
death in the ICU at Tacoma General, while Nicholas was in the NICU at
the same hospital, and Alex was in-patient at Children's Seattle.
September 2001 to November 2002
Nick - December 2002