Thursday January 20, 2000
Time is just flying by! Only nine more days until we can go home! We'll still waiting to hear if we'll be able to hitch a ride home on a corporate jet. We have three different organizations helping us, so I'm sure we'll find something.
Things have been pretty crazy around here. January 10th was Alex's second birthday and also the day she had one of her broviacs removed (she'll only need to go home with one). We felt kind of funny about having the broviac removed on her birthday, but realized that she doesn't understand the concept of a birthday yet. To her every day is a day where she gets presents! <grin> Anyway we had her 2nd birthday party the day before and
her two favorite nurses (Michelle & Trish) and a few of our friends came over for cake and ice cream. Unfortunately we couldn't have any kids over
(except baby Holli who also had a transplant) because of Alex's condition. Keeping her away from other children (because of the health risks) is going to be the hardest thing when we get home. Until she gets off the Cyclosporine (immuno-suppressant drug) she is going to be vulnerable to every little cold and something like chicken pox could be deadly.
Alex's numbers continue to be great. All of her counts are within normal range and the doctors continue to be amazed by her progress. Her platelets were 354,000 last Monday which is well within normal range! We're only going to clinic once a week (Tuesday) now which is pretty uncommon. Almost everyone else has to go at least twice a week for the first 100 days. You can't imagine how blessed we feel right now. Next week we'll have a full day of tests (EKG, breath test, etc...) to make sure we're ready to go home and then one final day in the clinic. It's amazing how fast the 100 days has gone by.
We're still waiting to hear from PEOPLE magazine about which issue Alex will be in. I'll send a message to Alex's mailing list as soon as I know for sure. Thanks again to everyone for your love, prayers, financial support, cards, letters, toys & generosity. We don't know where we would be without all of you.
Todd, Andrea, & Alex Martini
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