Friday February 1, 2002
Well I was going to update this page on Tuesday afternoon when Alex was released from the hospital. Unfortunately there wasn't time as we had to make two trips to the emergency room and one trip to clinic over the next two days. She was readmitted to the hospital last night
(Room 326) with a 105 degree fever and an ear infection. Since
Alex is currently neutropenic (no immune system) we won't be released until she is at least 48 hours post-fever. In the meantime we're back in isolation since they're not sure if Alex is still RSV (Respiratory Syncytial Virus) positive.
Andrea stayed with Alex last night (and most of last week) so tonight it's
my turn to sleep on the chair bed from hell!
While we were home Alex did get to build a few inside snowmen, but for the most part she took it easy. She was so tired she didn't even want to go outside to play in the snow. The good news is that the Mylotarg appears to be working well so far. Her White Blood Count has been reduced from 20.0 to 1.6 and her blast count went from 13,600 to 70. Hopefully the second dose of Mylotarg will wipe out the Leukemia completely.
We're still in the process of determining our next step after the Mylotarg treatments. Option 1 is a second Cord Blood Transplant (CBT). There is a 70% chance that Alex will survive a second CBT, but only a 25% chance that she'll remain in remission after the transplant. Option 2 is to hope that Alex can achieve another long term remission with Mylotarg and buy us some more time while new AML treatments are being developed. It's not going to be an easy decision for us, but that's why we get the big bucks!
We wanted to thank everyone who have offered their financial and emotional support over the past couple of weeks. Without all of you we wouldn't be able to be there for Alex.
Also wanted to thank everyone who sent Alex a card or gift while she's been in the hospital. It's made her a little less lonely in her isolation room.
Thanks again to all of you for
over three years of love,
support and prayers.
Todd, Andrea and Alex
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