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Update on Alex's Fight Against Leukemia

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Sunday May 2, 2006

Hi Everyone,

I have a couple of quick announcements to make. First, our interview on King 5 Seattle's Evening Magazine aired on May 1st. For those of you who missed it you can see the video on YouTube. I should let you know that there were a couple of errors in the story. We do not make $600k-$900k each month, as the host stated at the end of the segment. We've generated up to $900k in sales in a single month (12/05), but we're paid only a small percentage of that amount as commission. We are currently donating 10% of our profits or $1000, whichever is larger, to charity each month. If we ever do make $900k in a single month, we'll be making a very large donation to charity! 8-)

Second, Alex's Coupons featured charity for April 2006 is the PBMT (Pediatric Blood and Marrow Transplant) Family Support Program at Duke University Medical Center. Alex's Coupons has made a donation of $1000 to this amazing organization.

On May 6, 2006 the PBMT Family Support Program will hold The Rainbow of Heroes Walk, which is its annual fundraising event. Rainbow of Heroes is a walk commemorating and celebrating all the Pediatric Blood and Marrow Transplant patients and their families. In honor of the transplant inpatient unit, 5200, participants walk 5200 yards around the track at the Duke Center for Living. Balloons are carried in honor or memory of children who have been through or are currently in the program. Over $365,000 has been raised over the past five years.

The PBMT Family Support Program does amazing things for the transplant patients and their families. For the transplant patients they provide the following programs: Best Buddy Volunteers, CellMates (kids' support group) and ArtMates (kids' craft time). For the families they have a Crisis Team, pagers, phone cards, community meals, and Salon Day. All of these things are provided at no cost to the families and with no financial help from the hospital.

During the four months that we spent in the PBMT unit, we were constantly amazed at the generosity of the people who run the Family Support Program. I think each of us have a different favorite memory of the Family Support Program. Of course my favorite memory is of the community meals, which were a stress eater's dream! I gained 10-15 pounds during each of Alex's transplants.

Andrea's favorite program was Salon Day, which occurred twice a month.

Here's what she had to say about it: "Salon Day happens twice a month and is such a lifesaver!!!! I can't tell you what a relief it is not to have to worry about finding a hairstylist in an area that you're not familiar with and then, having to leave your sick child to go there! After all, not too many people can go four months or sometimes more without a haircut! The stylists come to the floor to cut, color and do whatever else is necessary to keep the parents looking like they actually have time to take care of themselves! It's awesome!"

If you ask Alex I think she'd tell you her favorite memory is of her Best Buddies Mariya & Dora who were always there for her during the toughest times.

The Family Support Program survives solely by donations, so please consider making a donation to this amazing organization. You can make a donation online at:

http://cancer.duke.edu/pbmt/rainbows/donate/

...and when it asks you to select your team choose Team Alex's Coupons.

Donations can also be made via check made payable to: Duke PBMT-04RH with Team Alex's Coupons written in the memo section. Check should be sent to:

Jane Schroeder
DUMC 3350
Durham, NC 27710

Click here for a list of the other Alex's Coupons Featured Charities.

Thanks in advance for your support. Take care.

Todd, Andrea, Alex & Nicholas Martini
 


April 2006 Photos


 


Happy Re-Birthday Alex!

Alex Self Portrait - April 2006Saturday, April 1 was Alex's 3 year re-birthday. On April 1, 2003 Alex received her second Cord Blood Transplant in a last ditch effort to cure her Leukemia. All we know about Alex's donor is it was a baby boy. Without this little boy and his Mother, Alex would not be alive today, so we are eternally grateful to them.

For those of you about to have a baby please look into the possibility of donating your baby's cord blood to the National Cord Blood Bank. The cord blood is taken from the placenta and umbilical cord after birth, so the Mother and baby don't have to be disturbed at all. The Carolinas Cord Blood Bank website has information on cord blood donation and also links to other cord blood banks. Please spread the news about cord blood donations. Here are some additional resources for those of you who are interested in public donation of Cord Blood:

Now it's time for some more good news! Last Friday Alex had her first clinic appointment in six months and it went great. Well it went great except for the fact that it took four or five pokes to get enough blood for all of the blood tests. By the time they were done poking her, she had band-Aids all over both arms, but my brave kid never cried once. Anyway, we got the blood test results on Saturday and Alex is still Cancer Free! The miracle continues!

Take Care,
Todd, Andrea, Alex and Nick


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