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Update on Alex's Fight Against Leukemia

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Quick Update: Monday May 12, 2003 (Day 41 Post-Transplant)

Hi Everyone,

Alex was released from the hospital on Saturday and is doing well. Her glucose level is still elevated, so she'll remain on insulin for the foreseeable future.  Just to clarify, having an elevated glucose level does not make you a diabetic. The problem was caused by a combination of FK506 and Solumedrol. Now that she is off the FK506, things should slowly start to return to normal.

Hope everything is going great. Take care.

-- Todd

Quick Update: Friday May 9, 2003 (Day 38 Post-Transplant)

Hi Everyone,

Alex went back in-patient tonight, as her glucose level (blood sugar) went through the roof. She's been taken off the FK506 and is being put on Cellcept, which is yet another immunosuppressant drug. No word yet on what side effects to expect with this one!

Alex should be out of the hospital tomorrow afternoon (Saturday) as long as her glucose level stabilizes. She is going to need to receive insulin injections at home and be on a diabetic diet until her blood sugar returns to normal. As you can imagine she's not too happy about having to get a shot, but we've explained to her that it has to be done if we want to stay out of the hospital.

Well it's midnight and I'm going to get some work done, while Nick sleeps. Take care.

-- Todd

P.S. Special thanks to Uncle George and Aunt Sadie for watching Nick tonight.

Quick Update: Tuesday May 6, 2003 (Day 35 Post-Transplant)

Hi Everyone,

Just wanted to let everyone know that Alex was released from the hospital last Saturday. She is still experiencing problems with high blood pressure, is on 12 different meds and needs to go to clinic everyday, but at least she's out of the hospital.

Looking Cool Taking a Nap

Nicholas actually slept through the night two nights in a row before Alex was released from the hospital. Unfortunately now that everyone is home he's waking up every few hours again. Needless to say we are seriously in need of some sleep.

Well I'm going to wrap this up and relax a little. Thanks again for over four years of love, prayers and support. Take care.

-- Todd

Friday, May 2, 2003 (Day 31 Post-Transplant)

Hi Everyone,

Alex & Nurse AndriaShe's 100% donor! We got the confirmation today that Alex is completely engrafted, which means the transplant is a success. There are still a lot of things that could go wrong including GVH, loss of engraftment, a return of her Leukemia, etc... Let's just say for the moment we're cautiously optimistic.

Alex's seizures stopped earlier this week and for the most part she has returned to her old talkative self. I have to admit we were pretty worried there for awhile, especially when the seizures robbed Alex of her speech. It was a tremendous relief when she started talking again.

Unless something goes terribly wrong we should be getting out of the hospital tomorrow (Saturday) afternoon. Just in time for Duke's Rainbow of Heroes Walk! Not sure if all four of us will be doing the full 5200 yards, but we'll probably give it a try.

Alex & NickNick was up to 10 pounds, 10 ounces today and for the most part he continues to do great. He is still spewing up his bottle every once in awhile, but it doesn't appear to be anything serious. The good news is that he slept for 8 hours straight last night. The bad news is that he screams in his sleep, so I didn't get much sleep. He's home with Mommy tonight, so I'm going to wrap this up and get a full 8 hours of sleep for the first time this week.

Thanks again for over four years of love, prayers and support. Take care.

-- Todd, Andrea, Alex & Nick Martini

Quick Update: Friday, April 25, 2003 (Day 24 Post-Transplant)

Hi Everyone,

It's been 48 hours since Alex started experiencing Cyclosporine Toxicity and though she has shown some signs of improvement, it appears that it will take longer than we thought for her to bounce back completely. The Cyclosporine Toxicity resulted in numerous small seizures and an almost complete loss of speech. The good news is that her speech is getting better, but so far she has yet to complete a sentence and in fact hasn't strung together more than 4 or 5 words at a time.

To prevent any further seizures Alex has been put on two anti-seizure drugs and valium, which has left her (in Andrea's words) "loopy out of her gourd". She has also been switched from Cyclosporine to FK506, which will hopefully help speed up her recovery from the toxicity. Still it's likely that she won't be released from the hospital until at least early next week.

While Andrea stayed with Alex today, I took Nick to his Pediatrician's appointment. Nick continues to do amazingly well and he is now 50th percentile in both height (21.5") and weight (10 pounds, 4 ounces) for his gestational age. A lot of that probably has to do with the fact that he's eating non-stop! We just hope he decides to sleep for more than 2 hours at a time tonight. We haven't had more than a few hours sleep a night for the last four days and it's starting to take its toll. I'm starting to feel like I'm losing the ability to speak more than 4-5 words at a time!

Finally we want to thank Dora for all of her help this week. Dora has been taking care of Nick on and off over the last few days, while we've been dealing with all of this. I don't know where we would be without her right now.

I'll post more as Alex's condition changes over the next couple of days. Take care.

-- Todd

Donations for Alex

We are in the process of raising money for the expenses we are incurring during Alex's 2nd Transplant At Duke. We have 3 ways in which you can make a donation:

Mail to: Frontier Bank
c/o Alexandra Elaine Martini
P.O. Box 527
Lake Stevens, WA 98258


via PayPal using your checking account or PayPal Account (this account cannot accept credit cards)


via PayPal using your credit card (this account can accept credit cards)

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