Monday August 16, 2004
Just wanted to let everyone know that Linda at Corporate Angel Network was able to find Andrea, Alex & Nick a flight down to Southern California. They left from Tacoma Narrows Airport, which is right across the street from our house, today at 2 pm. As always we'd like to thank Linda and Corporate Angel Network for all of their help. They really are incredible. We'd also like to thank the two pilots Lance & Nancy and the company they work for, which we unfortunately can't identify without permission. We really appreciate everyone's efforts to get Alex down to Southern California to see Dr. Kurtzberg.
Hope everyone is doing well. Take care.
Sunday August 15, 2004
Okay people, you have OBVIOUSLY
been taking PUSHY lessons from the EVIL Granny M!!!! HeHeHe I'm sorry I
haven't updated sooner, but we've been out having fun!
My mom (EVIL Granny M) came up on July 3rd to join the rest of us. So, we had both my parents, my sister Wendy and my niece Charisse here. It was great! On July 4th, we rented a boat and went out for the day. We went around to the water side of my parents' property to see what it looked like from the water. It was really fun. Alex and Nick LOVED the boat. It was so funny to watch Nick. The faster we went, and the choppier the water got, the happier he was!
On July 5th, Alex started horse camp and absolutely loved it. On July 12th, we drove out to Ellensburg and met up with the Mitchems. It was great to see them, as always! While Nick enjoyed the visit and all the extra attention he got from Mike and Marian, he HATED the hotel room. This was very unfortunate! He wound up screaming his head off until about 1 am and then woke up at 5 am and started all over again! Todd ended up putting him in the car and driving around for two hours so he would sleep! This did not make us look forward to taking him to camp later in the month!
On July 18th we went to the Woodland Park Zoo with the Starlight Foundation which was really fun. We hadn't been there for 3 years. In fact, the last time we were there was just after we found out that Alex had relapsed in the CNS and had a tumor in the orbit of her eye. While we were there we walked past this one spot in the park and it hit me that it was the exact spot we walked past while I was talking to Dr. K about whether or not to transplant her immediately. It really took my breath away. I'm telling you, we have some sick memories! The photos below were taken 3 years apart, with the one on the right obviously being the current one.
The last week of July we went to Camp Agape. It's a family camp for Cancer families. We had a blast! The dedication of everyone involved was amazing. Both kids had their own counselors and they both had non-stop smiles. Nick because he was constantly surrounded by pretty girls and Alex because for the first time in her life she got to play in a sandbox! Yes, you read that correctly. Alex had never played in a sandbox before! The camp had brought in clean sand that was covered every night, so we let her have at it!!! Everyone just had to giggle that of all the things they had for the kids to do there, the number one thing that Alex would choose would be the sand!
After camp she started summer
school. She wasn't as fond of this as we thought she would be. I think it
was a little too much work and not enough play for her taste. She has really
been having problems with sticking with things that are hard for her lately.
I think that she's getting really frustrated because learning isn't easy
like it used to be. She used to pick up everything so fast and now with all
the radiation and everything she has to really work at learning new things
and it's ticking her off! I want to thank Kay Sailsbury, Jenna's mom for
posting about the problems Jenna faced with studying. Jenna is an honor
student and gets phenomenal grades, but since her radiation has found it
increasingly difficult to focus on studying. When I read her latest update
the light bulb went on and I realized that this was what was going on with
Alex. I'm not sure yet how to help her with it, but we need to find a way so
that she can get back to loving being challenged and learning new things.
Andrea, Todd, Alex and Nick
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