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Update on Alex's Fight Against Leukemia

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Friday, August 30, 2002

Hi Everyone,

Chillin' w/ Teddy!As always sorry for the long delay in updates. We managed to escape from the hospital after 7 days in-patient and we've been home ever since. Alex is neutropenic (no immune system), on antibiotics, and has had some nasty IT chemo side effects (migraines & vomiting) but other than that she's doing pretty well. Just one little note about the photo at right. We did not put her in that outfit, she threw it together herself! <grin>

We got the news yesterday that Alex is once again in remission. I think this is remission #6, but my memory is a little hazy lately! <grin> We continue to prepare for a second transplant, but our insurance company is still refusing to approve it until January 2003. Because of that we are looking into FLT3 Inhibitors which are still in Phase 1 adult trials and would require an exemption for Alex to have them. FLT3 inhibitors are similar to Gleevec (used in CML treatment) as they are a long term treatment that blocks an enzyme that plays a critical role in the development of AML. Alex was FLT3 negative when she was diagnosed, so we have to hope that her Leukemia has mutated and become FLT3 positive. We should know by next week if she is FLT3 positive.

Baby M!Well we have some other good news to post. We're going to have another baby! It only took 4 1/2 years, but we finally found time to make another one. Still too early to tell the sex (almost 11 weeks along), but so far everything is going well. As you can imagine Alex is very excited about being a big sister, although she's still convinced there are two babies in there (a brother & a sister)! As you can see from the ultrasound there is only one! <phew> Now all we need to do is come up with a name. So far the frontrunners are Emma and Jacob.

We took Alex to her first drive-in movie last weekend. Since she's neutropenic we can't go to a movie theater, but let's face it drive-ins are a lot cooler. We brought the lawn chairs, sat in front of the car (w/ Alex on my lap) and saw a double feature (SpyKids2 & Scooby Doo) for $13! The movies started at 9 pm and didn't finish until way past midnight, and Alex didn't even fall asleep. We're hoping to go back again as soon as they bring in two new kid's movies. Other than the drive-in and a few dinners at restaurants with patios, we've been stuck at home for the past few weeks. Then again it beats the alternative of being stuck in the hospital.

Well I better wrap this up and get back to work. Thanks again to all of you for 3 1/2 years of love, support and prayers. 

Love,

Todd, Andrea and Alex

Donations for Alex


Mail to: Frontier Bank
c/o Alexandra Elaine Martini
P.O. Box 527
Lake Stevens, WA 98258

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