Monday, October 7,
it turns out I'm not persuasive enough to get Alex into either the FLT-3
inhibitor or the IT Busulfan trials. At least not until she relapses for
a sixth time. We were hoping to gain acceptance to both of these trials
before the next relapse, but it's just not going to happen. We can only
hope that the next relapse doesn't occur around the time that the new
baby is due (March 2003). That would be a little stressful! <grin>
least for the moment Alex remains in remission. She had a blood test
last Wednesday and her counts were perfectly normal. We'll doing a bone
marrow aspirate and spinal tap this Thursday and hopefully they will
come back normal also. At this point we know that another relapse is
going to happen. It's not a matter of "if" anymore, it's a matter of
"when". I just hope we can get through Christmas before it occurs.
A couple weekends ago we took Alex to the Family Fun Center in Tukwila
where she got to play Miniature Golf for the first time. She managed to
hit a hole in one (w/ a little help from Andrea) and also rode in the go
karts (where she and Andrea cut me off!). We even tried to get her on
the monster trampoline, but she wasn't quite big enough (you had to be
40 pounds). I got to make a complete fool of myself in the batting cage.
I haven't swung a bat in 12 years and all I can say is my reflexes are
completely shot. Alex kept worrying that I was hurting myself and
honestly I was! We finished off the day at the Rainforest Cafe (Alex's
current fav), which was a perfect ending to a great day.
recently signed up Alex for the
Starlight Children's Foundation which is a national organization
that provides in-hospital and outpatient programs and services. Last
Saturday the Washington
State chapter arranged for us to take Alex to a performance of
Beauty and the Beast at the Paramount Theater in Seattle and it was
incredible. We've seen the movie quite a few times and on her last
birthday we took Alex to the IMAX version, but this was special. My
favorite part was near the end of the play where Gaston and the Beast
are fighting. Right at that point Alex decided that the Beast needed
some encouragement, so she yelled out "Go Beast!". Then after the Beast
had thrown Gaston off the Castle's ramparts, she yelled out "Yeah
Beast!". Now you would think a 4 year old girl wouldn't be heard over
the music and action on stage,
just about everyone in the theater heard her including the cast on the
stage. We know this because we met
Danyelle Bossardet, the
actress that played Belle, at the stage door after the play. I happened
to mention that Alex had yelled "Yeah Beast!" and her eyes got wide.
Turned out that she and Marc Dalio (Gaston) had been laughing about it
backstage. I guess this kind of thing doesn't happen very much, but then
Alex is unique! <grin>
Note: Today we watched The Lion King together and during Simba
and Scar's fight scene Alex started yelling "Go Simba!" and "Yeah Simba!". Obviously I'm looking forward to when the musical version of
The Lion King comes back to Seattle!
We would like to thank everyone at
Starlight Children's Foundation (especially Gail Loveland) and the
Paramount Theater for helping to make this past Saturday a memorable day
for all of us.
Thanks again to all of you for almost 4 years years of
love, support and prayers. Special thanks to everyone at the Lutheran
Church of the Holy Spirit (My Mom's church) in Manahawkin NJ for all of
the cards, art supplies and books!
Todd, Andrea and Alex
P.S. On a sad note
Tommy Burnette died on
September 19, 2002. He was almost 8 years old. Our hearts and prayers go
out to his parents, Linette and Tom.
Mail to: Frontier Bank
c/o Alexandra Elaine Martini
P.O. Box 527
Lake Stevens, WA 98258