Tuesday October 7, 2003
usual, sorry for the delay in getting an update posted. Things are going
very well with Alex and Nick and we have been having fun pretending to be
"normal". Unfortunately, the same can't be said for some of our friends'
kids or my niece, Charisse.
On September 14th,
Taylor lost her fight
against leukemia and earned her wings. Her family has handled her passing
with amazing grace and strength.
At 12:05 am Tuesday morning,
Noah passed away. We were
so hopeful that he would be the one to prove all the doctors wrong and make
an amazing turn around. For a while, he did. Unfortunately, he came down
with an infection that attacked his lungs which forced them to put him back
on the ventilator. It became necessary to bring his oxygen saturation levels
up to 100% which caused his lungs to get burnt and scarred. His parents,
Greg and Debbie have been amazing through all this. They are exhausted and
are now left to go home without their son.
so tired of standing by, watching our friends have to say good bye to their
children. Please continue to keep
Noah's parents in your
Today my 16 month old niece, Charisse, was diagnosed with type I juvenile diabetes. She
has been admitted to Children's Hospital Orange County to be stabilized. My
mom and I received the news just as I was dropping her off at the airport to
fly home. This was a bit more than I could handle today. I'm beginning to
feel like our family is cursed!!! While juvenile diabetes is treatable,
there can be very serious complications due to it. I will be flying down
with Nicholas on Friday to help my sister once Charisse is released from the
hospital. It's not fun to have to learn to give your baby shots, when you
are the one she looks to for comfort and protection. Alex will stay home
with Todd since it is still too dangerous for her to fly commercially.
I said at the beginning of my message, Alex and Nick are doing great. Alex
started her 6 month post-transplant blood work two weeks ago at her
appointment and will complete the rest of the testing on Thursday. I'm not
sure if we will have any of the results yet or if we will have to wait a few
more weeks. She is back to her pre-transplant weight and is looking and
acting more like herself every day. Her hair is starting to really come back
and she's very excited about that. She had a great time while Grandma was
here getting spoiled rotten and playing beauty parlor. Of course, after my
Mom's nasty little guest book entry harassing me, she had to be punished!
No, I didn't really make her hitch hike home! But, I should have!
Nick is growing like a weed and
doing very well. He has been trying really hard to crawl, but can't seem to
get the concept of moving his hands when he moves his legs down! He still
does a great job of getting across the room! He absolutely loves Alex and
lights up when she comes into the room or plays with him. His favorite thing
to do with her at the moment is wrestle!!! It's so cute! It's hard to
believe that he's going to be 10 months old next week! So far we seem to
have gotten lucky again and like Alex, he knows no strangers! He smiles at
everyone and will gladly be passed off and held by anyone.
I'm sorry to do this, but I'm going
to have to cut this short. I am very scatter brained tonight and I'm having
a very difficult time composing coherent thoughts! Thank you for your
continued prayers, support and patience! I know that some of you (Mother),
greatly lack the latter, but we love you just the same! Nick and I hope to
see many of you next week! I know I say this every time, but I will try my
best to update sooner next time.
Andrea, Todd, Alex and Nick
We are in the process of raising money for the expenses we incurred during Alex's 2nd Transplant At Duke. We have
3 ways in which you can
make a donation:
Mail to: Frontier Bank
c/o Alexandra Elaine Martini
P.O. Box 527
Lake Stevens, WA 98258