Alex's   Place

Update on Alex's Fight Against Leukemia

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Tuesday October 7, 2003

Hi Everyone,

Alex's Beauty Parlor!As usual, sorry for the delay in getting an update posted. Things are going very well with Alex and Nick and we have been having fun pretending to be "normal". Unfortunately, the same can't be said for some of our friends' kids or my niece, Charisse.

On September 14th, Taylor lost her fight against leukemia and earned her wings. Her family has handled her passing with amazing grace and strength.

Modeling her new outfit!At 12:05 am Tuesday morning, Noah passed away. We were so hopeful that he would be the one to prove all the doctors wrong and make an amazing turn around. For a while, he did. Unfortunately, he came down with an infection that attacked his lungs which forced them to put him back on the ventilator. It became necessary to bring his oxygen saturation levels up to 100% which caused his lungs to get burnt and scarred. His parents, Greg and Debbie have been amazing through all this. They are exhausted and are now left to go home without their son.

I'm so tired of standing by, watching our friends have to say good bye to their children. Please continue to keep Taylor and Noah's parents in your prayers.

CharisseToday my 16 month old niece, Charisse, was diagnosed with type I juvenile diabetes. She has been admitted to Children's Hospital Orange County to be stabilized. My mom and I received the news just as I was dropping her off at the airport to fly home. This was a bit more than I could handle today. I'm beginning to feel like our family is cursed!!! While juvenile diabetes is treatable, there can be very serious complications due to it. I will be flying down with Nicholas on Friday to help my sister once Charisse is released from the hospital. It's not fun to have to learn to give your baby shots, when you are the one she looks to for comfort and protection. Alex will stay home with Todd since it is still too dangerous for her to fly commercially.

Old Broad Needs a Lift!Like I said at the beginning of my message, Alex and Nick are doing great. Alex started her 6 month post-transplant blood work two weeks ago at her appointment and will complete the rest of the testing on Thursday. I'm not sure if we will have any of the results yet or if we will have to wait a few more weeks. She is back to her pre-transplant weight and is looking and acting more like herself every day. Her hair is starting to really come back and she's very excited about that. She had a great time while Grandma was here getting spoiled rotten and playing beauty parlor. Of course, after my Mom's nasty little guest book entry harassing me, she had to be punished! No, I didn't really make her hitch hike home! But, I should have!

Wrestle Time!Dad, Can I Borrow the Car?She's Still Smiling

Nick is growing like a weed and doing very well. He has been trying really hard to crawl, but can't seem to get the concept of moving his hands when he moves his legs down! He still does a great job of getting across the room! He absolutely loves Alex and lights up when she comes into the room or plays with him. His favorite thing to do with her at the moment is wrestle!!! It's so cute! It's hard to believe that he's going to be 10 months old next week! So far we seem to have gotten lucky again and like Alex, he knows no strangers! He smiles at everyone and will gladly be passed off and held by anyone.

The LookAlmost Ready to Crawl!Hanging out with Daddy

I'm sorry to do this, but I'm going to have to cut this short. I am very scatter brained tonight and I'm having a very difficult time composing coherent thoughts! Thank you for your continued prayers, support and patience! I know that some of you (Mother), greatly lack the latter, but we love you just the same! Nick and I hope to see many of you next week! I know I say this every time, but I will try my best to update sooner next time.

Take Care,

Andrea, Todd, Alex and Nick
 

Donations for Alex


We are in the process of raising money for the expenses we incurred during Alex's 2nd Transplant At Duke. We have 3 ways in which you can make a donation:

Mail to: Frontier Bank
c/o Alexandra Elaine Martini
P.O. Box 527
Lake Stevens, WA 98258

OR


via PayPal using your checking account or PayPal Account (this account cannot accept credit cards)

OR


via PayPal using your credit card (this account can accept credit cards)



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